Rob Ashdown

Former teacher of pupils with severe and profound and multiple learning difficulties and special school Headteacher.

Jeanne Carlin

Retired Disability Consultant and a parent of a young woman with PMLD.

Helen Daly

Mum to a young Adult with PMLD, previous career in Further Education for 20 years – including Curriculum Team Manager for Inclusive Learning and Developing an Improving Choice Programme for people with Complex Needs. Currently involved in carers groups in the Eastern Region, Learning Disability Partnership Board and associated projects.

Jill Davies

Jill Davies currently works for Oxleas NHS Foundation Trust as a community nurse specialising in mental health in people with learning disabilities

Ann Fergusson

Annie is a senior lecturer in the SEN & Inclusion team at the University of Northampton, teaching on undergraduate and postgraduate courses relating to severe, profound and multiple learning disabilities. Her research interests relate to person-centred working, meaningful participation and the voice of the individual in promoting positive mental health and wellbeing. She works one day a week in a special school with a role for training and looking at impact. Annie has a brother with a learning disability. She is a family member of the Learning Disabilities Mortality Review Programme Advisory Group.

Michael Fullerton

Michael the Director of Quality and Clinical Care with CMG, a social care provider supporting adults with profound and multiple learning disabilities. Michael is a registered learning disability nurse and leads a health team focused on the quality of life of people with PMLD. Michael co-hosts the #PMLDChat Twitter chats.

Martin Goodwin

Martin is a teacher of pupils with PMLD and a Regional Tutor/Visiting Lecturer for the Severe and Profound Multiple Learning Disabilities course at the University of Birmingham. Martin has specialised in approaches to improve interaction, communication and participation of people with severe and profound learning disabilities. Martin has experience of working in play and leisure, education, residential and advocacy.

Joanna Grace

Joanna Grace is a sensory engagement and inclusion specialist. She is the founder of The Sensory Projects which are run on the principle that with the right knowledge and a little creativity inexpensive items can become effective sensory tools for inclusion. Joanna co-hosts the #PMLDChat Twitter chats.

Rachel Parry Hughes

Lecturer in Social Work, Goldsmiths, University of London, researcher in the field of profound and multiple learning disabilities.

Becky Loney

Becky has a background in running creative services for adults with PMLD within the voluntary and statutory sector and she established the Lambeth Mencap Carousel project. Becky is passionate about intensive interaction and sensory storytelling, and spreads the word by training staff teams in high quality activities and creative approaches. .

Wendy Newby

Deputy Headteacher at The Shrubberies School, Stonehouse, Gloucestershire. This is a school for students with Severe and Profound Learning Difficulties.

Jill Pawlyn

Jillian Pawlyn has a background in Learning/ Intellectual Disabilities Nursing and is an enthusiast and advocate of Technology Enhanced Learning. During her years as a registered nurse Jillian has developed a specialist interest in the health needs of people with a learning/ intellectual disability in particular those individuals who have Profound Intellectual and/or Multiple Disabilities (PIMD/ PMLD). She is a member of both the national and local PMLD Networks

Sue Thurman

Former NHS Speech and Language Therapist for adults with learning disabilities with a particular interest in PMLD. Now writes and trains about communication and is a Registered Intermediary assisting vulnerable witnesses to communicate at police stations and courts.

Bella Travis

Policy Lead, Mencap

Hannah Young

Hannah completed her PhD studies on the loss experiences of people with PMLD. She is Researcher for PAMIS, a Scotland-based charity supporting families of people with PMLD, and has led a number of projects that aim to enhance quality of life for this group. Her experience also includes teaching, training and digital developments. Hannah acts as Welfare Guardian for her brother.