Who makes PMLD LINK available to me?
The PMLD LINK website is made available to you by the Trustees of PMLD LINK which is a not-for-profit charity registered with the Charity Commission. Our postal address is 15 Cliff Gardens, Scunthorpe, North Lincolnshire, DN15 7PH.
We do not provide a complete list of our digital Content here but they include the archive of all issues of the PMLD LINK journal since 1988 and Resources that will be of use to people supporting children and adults with PMLD.
When we refer to our Content, we mean any audio, video, text, images, logos or other content made available to you by us and may sometimes include content which is owned or controlled by third parties which we are permitted to make available to you.
Why does PMLD LINK ask me to register?
By becoming a registered guest subscriber (no subscription cost), you will be able to access much of the digital Content but not the most recent issues of the journal.
By becoming a registered customer (paying an appropriate subscription cost annually), you will be able to access all of the digital Content including the most recent issues.
What do I agree to by accessing and using the digital Content available?
By becoming a registered subscriber you agree that you will:
- provide a valid email address;
- provide a postal address if you are a paying customer wishing to receive hard copies of the journal;
- not let anyone else use your account (though some organisations such as NHS services, universities and colleges are permitted to share these with staff and students);
- notify us if you become aware of any unauthorised use of your account.
Whether or not you are a registered user, when using PMLD LINK’s website and Facebook and Twitter for social messaging we ask that you always act honestly and appropriately.
What do I need to know about my registered details?
You will be able to access your registered details on the website with your email address and password. You will be able to keep your information up to date by logging in and updating your profile.
If you want to terminate your website account, you can do so by e-mailing us to say that you want your account closed. We will wipe the personal information you gave us from our systems, which means that all other information we might hold about you (such as how you have used PMLD LINK) will be anonymised and we won’t be able to recognise that data as yours or contact you about it.
I’m concerned about my personal data. What can PMLD LINK use this for?
Can I copy material from PMLD LINK?
All of the digital Content belongs to us and/or partner organisations which have given us permission to share it and/or is already in the public domain.
We have no objection to you printing out extracts or even whole texts for your own personal use. You should not embed, upload or make any of the digital Content available via any third party platform, website or service without prior consent from PMLD LINK.
You are not permitted to use any part of the PMLD LINK Content for commercial purposes. For example, you must not attempt to sell access to our Content in any way. Your use of any of our digital Content is for your own personal use, except in the case of organisations that wish their staff and students or others connected with the organisation to access the digital Content.
Our Content may be streamed or downloaded depending on which digital products and services you are using. We may use content security technology or use other content protection measures. You agree that you will not circumvent, try to adjust or otherwise interfere with our security technology for any reason.
Is PMLD LINK responsible for third party websites when it provides a link to these?
Sometimes, third party websites provide links to our Content. This does not mean that we have any relationship with that website and you should be careful about assuming PMLD LINK’s association or affiliation to anyone else, especially where the existence of that relationship has not been confirmed by us.
How can I download Content?
Content can be downloaded depending on which device or website you are using. To be able to download our Content, you must be a registered user and logged in to your account at the time of download.
Content is available to download permanently; there is no limit on the time available for reading or watching that Content. Please be aware that once Content has been downloaded to your device, information featured within it may cease to be relevant or become out of date over the course of time.
What are the rules I need to know about user content?
We provide users with an opportunity to participate in shared activity such as contributing to the journal or via online comments through Facebook and Twitter.
You will own your user content and may continue to use it, but by posting or submitting this content to us, you allow us irrevocably to use your content in any media (including online) at any time without further liability to you.
Where we do use your user content, we also have the right to change or edit this. We might also show your name (and if available photographs) with your contribution. If you would rather that we did not use your user content, we would kindly ask that you do not post or otherwise submit any user content to us.
I would like to post links to PMLD LINK content on my website, or other social network account like Facebook or Twitter. Is this ok?
When using our Content you must not:
- copy, re-publish, edit, alter, add to or use the Content in any other way (we do ask that any reproduced text from the PMLD LINK journal shows the journal name, date, volume number and pages prominently);
- charge users for access to the Content, or use the Content as a means to secure advertising or other revenue in any other way;
- directly or indirectly suggest any endorsement or approval by us of your website or page or any product or content or any views expressed;
- use the Content in any way that could bring PMLD LINK into disrepute or otherwise cause any loss or damage to PMLD LINK
What technical stuff do I need to know about?
We will try to ensure PMLD LINK is available to you at all times. However, we do not provide any guarantees about its availability or that we will be able to resolve quickly any technical problems that arise.
Whilst we seek to make PMLD LINK available as widely as possible, some features and functionality may not work on all devices. Please note that matters relating to the internet generally, such as broadband availability, connections and speed and other matters outside of our control may affect the quality and availability of our digital Content. We take no responsibility for these sorts of matters.
If you have any problems viewing our Content, please contact us for further guidance.
Whilst we will take reasonable steps to ensure that our Content is virus free, we cannot guarantee this. Accordingly, you must take your own precautions in this regard (such as using anti-virus software). We accept no responsibility for any infection by virus or any other contamination or by anything which might have a destructive property.
What if I have a complaint?
If you wish to comment on our digital Content you can contact us via e-mail (firstname.lastname@example.org). You can also contact us at our postal address set out above.
If you see any content which appears on the PMLD LINK website, Facebook or Twitter which you consider to infringe your copyright, please let us know. When you notify us about a copyright infringement you will need to: (a) provide your contact details; (b) identify the infringing content; and (c) confirm that you own the copyright in the content and that its publication has not been authorised by you. Following receipt of this notification, we will consider whether the content ought to be taken down.
What other legal stuff do I need to know about?
Any commentary, opinions or other material within the digital Content made available by PMLD LINK are not intended to amount to advice on which you should rely.
The General Data Protection Regulations require us to set out in this policy document how we will handle any personal information you provide and we need to save in order to ensure effective and efficient communication with you in your dealings with PMLD LINK
We collect information in the following ways:
- When you give it to us DIRECTLY
There are many ways you may give us your information. For example, when you pay for an annual subscription, make a donation or communicate with us either by phone, in writing, including email or in person.
- When you give it to us INDIRECTLY via Social Media
Depending on your settings or the privacy notices for social media and messaging services like Facebook or Twitter, you might give us permission to access information from those accounts or services.
- Via information available publicly
This may include information found in places such websites (charities, services, schools, action groups, etc.), Companies House and information that has been published in articles/newspapers.
What personal information we collect and how we use it
The personal data we will usually collect is your name and contact details and nature of your interest in PMLD LINK (e.g. as a subscriber, as a free guest subscriber to the website, a contributor to the journal, as an editor or a trustee, etc.).
We always seek permission to use images of people in the journal, on the website, in newsletters and on our social messaging sites. We only use these images and for specific purposes when permission has been granted. We will keep the records of permission and images securely.
If you make a donation or pay an annual subscription fee and offer to use gift aid, we are required by law to retain that information for a period of 7 years. If you have obtained clearance through the DBS (Disclosure and Barring Service) we may wish to keep a record of that fact if PMLD LINK employs you for any work.
How we will use your data
We may wish to communicate with you about events and activities organised through PMLD LINK or to provide you with news items via the website or via email or Facebook/Twitter.
We will not provide information about you, personally, to any external organisation unless you consent for us to do so, but we may need to provide statistical information (e.g. how many volunteer editors or subscribers we have) to organisations such as the Charity Commission or grant making bodies or other funding bodies.
If you are an employee or doing work as self-employed consultant
We will need to retain and store information relating to your job description, your salary, and details of individual circumstances relating to your and our wish to provide a flexible and satisfying work environment. You will have access to this information but not to information relating to any other member of staff unless that is necessary in the execution of your own duties, e.g. communication with editors of the journal.
We may need to disclose your details, if required to the police or other legal agencies, for example HMRC, regulatory bodies or our legal advisors.
We have a duty to report certain types of personal data breaches to the relevant supervisory authority, and where feasible, we will do this within 72 hours of becoming aware of the breach. If a breach is detected and likely to result in a high risk of adversely affecting you, we will inform you without undue delay.
How we keep your information safe and who has access to it
We ensure that there are appropriate physical and technical controls in place to protect your personal details. For example, confidential paper records are securely stored, our online forms and our network is protected and routinely monitored. Confidential paper waste is destroyed at our business premises.
We undertake regular reviews of who has access to information that we hold to ensure that your personal information is only accessible by appropriate people.
Where we store your information
Information is stored in equipment owned by PMLD LINK and at the charity’s business address. Access to such equipment will be password protected. When essential to do so, information may be temporarily stored on computers owned by editors of the PMLD LINK journal or the Charity Trustees of PMLD LINK (e.g. Secretary, Treasurer, Chairman).
How long we retain your information and how we keep it up to date
We will only keep your information for as long as we need it and will delete or destroy all records (as long as we are legally permitted to do so) if you request us to do so. However, there are statutory timescales on how long we should keep your information, for example financial records must be kept for 7 years, information associated with Health & Safety for three years after an event. We shall delete your information according to these statutory limits, or according to guidance issued by the Information Commissioner.
Information we collect through your use of our website
We collect certain information or data about you when you browse the PMLD LINK website anonymously. This includes:
- your IP address, and details of which version of web browser you used
- information on how you use the site, using cookies to help us improve the website
- details to allow you to access our services, for example an email address (you’ll always be told when this information is being collected, and it will only be used for the purpose you provide it for).
This helps us to improve the site by monitoring how you use it and respond to any feedback you send us, if you have asked us to. We cannot personally identify you using this data. If we do want to collect personally identifiable information through our website we will make it clear when we collect personal information and will explain what we intend to do with it.
Opting into and out of marketing and other fundraising communications
With your consent, we may contact you to let you know about upcoming events, offers from the PMLD LINK, updates on our plans and progress we are making, and to ask you to join as a subscriber, make a donation or give other types of support. Occasionally, we may include information from our partner organisations or organisations who support us in these communications.
We make it easy for you to tell us how you want us to communicate, in a way that suits you. Our forms will have clear marketing preference questions and we include information on how to opt out when we send you marketing details.
Who we might share your personal information with
Your personal information might be passed to a third party if they need it to fulfil your order(s) for our journal, to execute the communications we send to you, to process a donation, or where you have otherwise consented to being contacted by selected third parties, such as partners and associates. We do comprehensive checks on these companies/individuals before we work with them, and put a contract in place that sets out our expectations and requirements, especially regarding how they manage the personal information they have collected or have access to.
Examples of these third parties include our bank (in order to process Direct Debit and other payments), the printer (for distributing our journal), and a marketing officer for bulk email distribution.
Except as set out in this policy, we shall not disclose your personal information unless obliged to by law, or where we need to in order to run our business (e.g. where other people process information for us). In such circumstances, we ask those people to give us confidentiality or non-disclosure undertakings.
The General Data Protection Regulations gives you certain rights and these are available on the Information Commissioners website https://ico.org.uk/.