Activities and leisure

This guide aims to make sure people with PMLD and their families are able to access meaningful and interesting activities in places where their needs can be met.
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Advocacy

This guide to advocacy will help local areas implement Raising our Sights recommendations, and understand and meet the advocacy needs of people with PMLD
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Commissioning

The Core and Essential Service Standards are designed to improve the lives and life experiences of people with profound and multiple learning disabilities.
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This guide is aimed at people responsible for planning and commissioning local health and social care services. It will also be useful for service providers.
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Mencap and the PMLD Network have produced a series of how-to guides and films to help local areas meet the needs of people with PMLD, funded by the DoH
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Communication

A review of useful resources for assessing and developing communication skills of learners with PMLD
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This communication guide focuses on what ‘good’ looks like and what needs to be in place to meet the communication needs of people with PMLD.
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The HOP recommends to service professionals productive ways of spending dedicated time with a person with PMLD and a way of thinking about the person.
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This is an approach to teaching the pre-speech fundamentals of communication to learners who are still at an early stage of communication development.
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This book includes a suggested communication curriculum for children and young adults with PMLD. It provides an overview of assessment and teaching approaches.
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This approach to establishing intentional communication aims to show pupils that they can behave in ways that communicate desires or rejection of things or activities.
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Education

Routes for Learning is an assessment designed to assess communication and cognition. It is based on observation of the learner’s responses to a range of activities and situations which would be entirely familiar
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The Communication Matrix is designed to assess communication in children and adults at early developmental stages
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Quest for Learning is based on Routes for Learning but includes more on certain aspects of communication (such as Intensive Interaction) and additional materials
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This is a key resource for the Routes for Learning Assessment
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Families

This guide on support for families will help local areas implement recommendations about short breaks and meet the needs of families of people with PMLD.
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Health

How to meet the needs of people with profound and multiple learning disabilities (PMLD) in hospital. A guide for healthcare professionals, families and support staff
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This partnership checklist is to help everyone who may be involved in providing care for a patient with a learning disability – especially where the patient may be unable to make decisions about their care or treatment [...]
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A guide to creating and sharing sensitive multi-sensory stories with people with PMLD developed by PAMIS and Mencap's Treat Me Well campaign
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This document contains a link to a short film showing how people working in healthcare can give people with PMLD the best possible care in hospital.
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This health guide will help local areas implement Raising our Sights recommendations and understand and meet the health needs of people with PMLD.
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This clinical procedures guide will help local areas implement the Raising our Sights recommendations and ensure the inclusion of people with PMLD.
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Collection of resources to assist care givers when supporting people to achieve their optimum health.
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This leaflet tells you what a health check is, how to get a health check and how to find out more information about health checks.
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The Annual Health Check scheme is for adults and young people aged 14 or above with learning disabilities who need more health support and who may otherwise have health conditions that go undetected.
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Housing

This housing guide aims to address aspects of regulation and policy which are currently acting as barriers to people with PMLD accessing suitable housing.
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Legislation and Policy

In 2010, Professor Jim Mansell published 'Raising Our Sights', which looked at services and support for people with PMLD. This report inspired the Raising our Sights 'how-to' guides featured here.
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This contains key recommendations from each of the Raising Our Sights How-to guides
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Moving and Handling

This wheelchairs guide is specifically aimed at those who support people with PMLD who need more complex seating
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Person centred planning

This personalisation guide will help local areas understand and meet the personalisation needs of people with PMLD.
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PMLD

Here we explain the description of profound and multiple learning difficulties developed by the PMLD Network and Mencap and used in PMLD LINK’s Core and Essential Service Standards and throughout the journal.
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This document is intended to develop understanding of profound and multiple learning disabilities. It is the standard version of a document that is available on the Mencap website.
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PMLD Standards

Sheridan Forster describes a Hanging Out Café as a get together and celebration of people who primarily use body, gaze, reach, sound, and movement communication
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This is an article about a young woman whose resilience and quality of life experiences were due to her own positive risk taking.
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The PMLD Standards offer a set of indicative, national benchmarks clarifying 'what Good looks like' for people with PMLD to enable commissioners of services and services themselves to evaluate the quality of provision.
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Workforce

A 2010 report from Toby Salt who was commissioned by the Government to investigate the state of teacher supply for pupils with PMLD and SLD.
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This guide will help local areas focus on what is ‘good’ and what needs to be in place to ensure that we have the right staff to support people with PMLD
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