Within This Issue
This edition has families as its focus and it is especially pleasing to see a number of articles written by parents of people with PMLD. Three of these were facilitated by Loretto Lambe (Director of PAMIS) and are written by families supported by PAMIS in Scotland. They highlight the thoughts and concerns families have for the way services are currently developing. Loretto has also provided an article on the evaluation of the services PAMIS provides and why families value them so highly. We also hear from two further parents and the work that they are doing: from Karen McCane who set up the Challenging Behaviour Foundation, having gained much insight in to what support families need from her own experiences with her son; and from Dr Phillipa Russell, eminent in the world of learning disability and long term campaigner for human rights, writing as Chair of the newly established Carers Commission set up by the last Labour Government. There are also contributions from the Touch Trust, Soundabout and the Postural care team providing insight in to how these organisations work with families. Finally, there is an article about why the country’s leading learning disability organisations have come together in a new alliance, the Learning Disability Coalition.
